PURPOSE and GOALS
Every year, 250,000 women globally are diagnosed with invasive ovarian, peritoneal or tubal cancer, and 140,000 women die of the disease. Unlike many other forms of cancer, ovarian cancer is typically diagnosed at an advanced stage.
The purpose of the Ovarian Cancer Registry is to recruit women with a history of ovarian, peritoneal and tubal cancer to join a movement and call to action to drive advances in patient-centric ovarian cancer research.Research performed using data from patients with the disease or condition of interest (in this case ovarian, peritoneal or tubal cancer) is the most likely to produce clinically meaningful results. The more people that sign up, the more effective the Registry will become.
Patients and survivors who join the Registry can collaborate directly in ongoing cancer research with clinicians, scientists, and many other types of professionals all working together to end ovarian cancer. Together we can make the difference!
If you are a patient or survivor with invasive ovarian, peritoneal or tubal cancer, please Join the Registry today.
If your loved one has invasive ovarian, peritoneal or tubal cancer, please share our information about the Registry and encourage them to become a member.
To learn more about the diverse team of clinicians, scientists and other professionals who work for the Registry, click here.
With the help of people like you, the Ovarian Cancer Registry will:
Study patient data to make rapid advancements in the prevention, early detection, and treatment of ovarian, peritoneal, and tubal cancer including:
- Outcomes that are important to you in your treatment
- Improved monitoring capabilities for the spread of your cancer
- Better understanding of your response to treatments
- Perceptions about new cancer treatments called biologic therapies
- Symptoms that affected you most during treatment
- Effects on your family dynamics and work related issues
- Impact of lifestyle factors on your survival rates
- Barriers you experienced during your diagnosis and treatment
- Communication between you and your physicians as well as other health care professions
- Perceptions regarding quality of healthcare
- Ways to reduce barriers to access care
- Methods to lower stress and anxiety you feel to possibly improve the effectiveness of treatments
Serve as a community for patients, survivors, friends, family members and advocates to share their stories, learn from and help one another, pay tribute to those who have lost the fight, and raise awareness about ovarian cancer. Community members may:
- Make connections with one another
- Provide support
- Share personal stories
- Pay tribute to those who have lost their battle with ovarian cancer
- Get the word out about ovarian cancer and the Registry
- Encourage others to advocate about ovarian cancer and spread the word about the Registry
Engage in public activities related to awareness (i.e. National Race to End Women’s Cancer, Globe-athon to End Women’s Cancer, Ovarian Cancer Dayand regional race and walk events hosted by Gynecologic Cancer Foundation, Globe-athon to End Women’s Cancer, National Ovarian Cancer Coalitionand other organizations.